Rare Disease Ghana Initiative - Accra

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Listing
+4Years
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Company name
Rare Disease Ghana Initiative
Address
F393 Fourth Otswe St, Accra, Accra, Ghana
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Phone number
+233500017050
Working hours
Saturday: 10:30am - 3:00pm  See All
Establishment year 2018
Employees 16-25
Registration code CG071512018
VAT registration C0013567314
Company manager Samuel Agyei Wiafe

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Company Details

Location map
F393 Fourth Otswe St, Accra, Accra, Ghana Get Directions
Description
Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization in Ghana leading advocacy, serving as a voice and coordinating care for persons living with undiagnosed, genetic and rare diseases in Ghana. The mission of RDGI is to improve the wellbeing and quality of life of families affected by undiagnosed and rare diseases in Ghana.

RDGI brings together rare disease patients, caregivers, support groups, charitable and non-profit organizations, health organizations, clinical experts, researchers, emerging biotech enterprises, and industry partners to take action on rare disease in Ghana and in collaboration with international alliances. RDGI provides an enabling platform for addressing gaps in the entire continuum of rare disease management. This spans from increased knowledge and awareness, early diagnosis and prevention to best treatment practices and care, community engagement and comprehensive research.

Rare Disease Ghana Initiative is a member of Rare Disease International; a member of African Alliance for Rare Disease and a member of Rare Foundation Alliance of Global Genes. Rare Disease Ghana Initiative is a member of the International Rare Disease Research Consortium (IRDiRC) and serves on Patient Advocacy Constituent Committee (PACC).Rare Disease Ghana Initiative is a member of the Undiagnosed Disease Network International (UDNI). RDGI is also a member of the West Africa Civil Society Organizations (WACSO) under the West Africa Civil Society Institute (WACSI).
Working hours
WeekdayTime
Monday:9:30am - 5:00pm
Tuesday:9:30am - 5:00pm
Wednesday:9:30am - 5:00pm
Thursday:9:30am - 5:00pm
Friday:9:30am - 5:00pm
Saturday:10:30am - 3:00pm
Sunday:Closed

Verified Business

The accuracy of the company profile for Rare Disease Ghana Initiative is validated by the company owner, representative, or directory administrator.
Last update on April 2020

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